Long-COVID in VitaminDWiki

Created January 2021

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Sexual dysfunction, hair loss also linked with long COVID - Aug 2022

MDEdge

  • "They also found that people more likely to have persistent symptoms 3 months after COVID infection were also more likely to be young, female, smokers, to belong to certain minority ethnic groups, and to have lower socioeconomic status. They were also more likely to be obese and have a wide range of health conditions."

    • Many of the above problems are associated with low vitamin D

  • Based on the study Symptoms and risk factors for long COVID in non-hospitalized adults - July 2022   📄 PDF

    • The largest aHRs were for anosmia (aHR 6.49, 95% CI 5.02–8.39), hair loss (3.99, 3.63–4.39), sneezing (2.77, 1.40–5.50), ejaculation

difficulty (2.63, 1.61–4.28) and reduced libido (2.36, 1.61–3.47)

US Gov. finally has a long-COVID plan - Aug 2022

The US Now Has a Research Plan for Long COVID—Is It Enough? JAMA Aug 12

  • “Long COVID” = post-COVID conditions = PCC, = both direct and indirect effects,

  • postacute sequelae of SARS-CoV-2 infection = PASC, includes only the direct effects.

  • ",,, pointed out that it still needs congressional funding. She called the plan otherwise “underwhelming.”

    📄 Download the study from VitaminDWiki

At least 90 long Covid groups exist around the world in 34 countries. - Aug 2022

‘Left to rot’: The lonely plight of long Covid sufferers

Many with long-COVID has low Cortisol levels (regulated by Vitamin D) - Aug 2022

Yale researchers have unearthed a new clue that may explain who has long COVID—and how to treat the chronic condition Fortune Magazine

About 10 million Americans have long-haul - April 2022

Washington Post

  • "Under a memorandum issued by Biden, the Department of Health and Human Services will coordinate a government-wide action plan to address long covid, which is estimated to afflict anywhere from 7.7 million to 23 million Americans, according to a recent federal watchdog report."

Long-Haul group in Facebook has 190,000 members - March 2022

Survivor Corps

Long covid is destroying careers, leaving economic distress in its wake - Dec 2021

Washington Post

  • "Suffering from debilitating exhaustion and pain for months, patients find themselves on food stamps and Medicaid"

  • "Across America, many of the nearly 50 million people infected with the coronavirus continue to suffer from some persistent symptoms, with a smaller subset experiencing such unbearable fatigue and other maladies that they can’t work, forcing them to drop out of the workforce, abandon careers and rack up huge debts."

  • "several medical specialists said 7 50,000 to 1.3 million patients likely remain so sick for extended periods that they can’t return to the workforce full time."

Costly supplement cocktail for Long-Haul - 2021

image https://www.vedicinals.com/

2 of the ingredients are known to activate the Vitamin D Receptor

$172 for 1 month.

Has studies that support it. Have not looked at them

COVID is probably not the only health problem that results in Long Haul ($1 Billion research) Nov 2021

Could long covid unlock clues to chronic fatigue and other poorly understood conditions? Washington Post

  • "...the $1.15 billion investment in research would go beyond long covid to “improve our understanding of other chronic post-viral syndromes and autoimmune diseases, as well as other diseases with similar symptoms.”

  • "“How many people have long-term nagging or even disabling symptoms after other viral illnesses, such as flu?”"

  • "....Akiko Iwasaki, a Yale immunologist and principal investigator at the Howard Hughes Medical Institute, who lists five hypotheses that she believes could explain the biological underpinning of long covid. Top among them is what she calls a “viral reservoir” of persistent virus or viral remnants in the body that cause chronic inflammation. "

Long-Haul COVID likely caused by Epstein-Barr virus

Epstein-Barr Virus may cause Long-Haul, CFS, and MS (Vitamin D should help

Survey of 5,000 long-haulers- March 2021

https://www.survivorcorps.com/

Some of the columns at the top of one very long table

image

📄 Download the PDF from VitaminDWiki

Long Haul probably decreased if increase Vitamin D getting to cells - on the web

More than 50 Long-term effects of COVID-19: a systematic review and meta-analysis - Jan 2021

Prerint [doi: https](https://doi.org/https)://doi.org/10.1101/2021.01.27.21250617 Sandra Lopez-Leon, Talia Wegman-Ostrosky, Carol Perelman, Rosalinda Sepulveda, Paulina A Rebolledo, Angelica Cuapio, Sonia Villapol image COVID-19, caused by SARS-CoV-2, can involve sequelae and other medical complications that last weeks to months after initial recovery, which has come to be called Long-COVID or COVID long-haulers. This systematic review and meta-analysis aims to identify studies assessing long-term effects of COVID-19 and estimates the prevalence of each symptom, sign, or laboratory parameter of patients at a post-COVID-19 stage. LitCOVID (PubMed and Medline) and Embase were searched by two independent researchers. All articles with original data for detecting long-term COVID-19 published before 1st of January 2021 and with a minimum of 100 patients were included. For effects reported in two or more studies, meta-analyses using a random-effects model were performed using the MetaXL software to estimate the pooled prevalence with 95% CI. Heterogeneity was assessed using I2 statistics. The Preferred Reporting Items for Systematic Reviewers and Meta-analysis (PRISMA) reporting guideline was followed. A total of **18,251 publications** were identified, of which **15 met the inclusion criteria** . The prevalence of 55 long-term effects was estimated, 21 meta-analyses were performed, and 47,910 patients were included. The follow-up time ranged from 15 to 110 days post-viral infection. The age of the study participants ranged between 17 and 87 years. It was estimated that **80%** (95% CI 65-92) of the patients that were infected with SARS-CoV-2 developed **one or more long-term symptoms** . The five most common symptoms were

  • fatigue (58%),

  • headache (44%),

  • attention disorder (27%),

  • hair loss (25%), and

  • dyspnea (24%). [difficult or labored breathing]

All meta-analyses showed medium (n=2) to high heterogeneity (n=13). In order to have a better understanding, future studies need to stratify by

  • sex,

  • age,

  • previous comorbidities,

  • severity of COVID-19 (ranging from asymptomatic to severe), and

  • duration of each symptom.

From the clinical perspective, multi-disciplinary teams are crucial to developing preventive measures, rehabilitation techniques, and clinical management strategies with whole-patient perspectives designed to address long COVID-19 care. **📄 Download the PDF from VitaminDWiki** **Clipped from the PDF** The patient follow-up time ranged from 14 days to 110 days. Six out of the 11 studies included only patients hospitalized for COVID-19. The rest of the studies mixed mild, moderate, and severe COVID-19 patients.

Long-haul similar for vaccinated and unvaccinated - Oct 2021

**Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections** image **📄 Download the preprint PDF from VitaminDWiki**

Long-Haul reduced by vaccination: studies range from 0% to 40% - April 2022

**Do Vaccines Protect Against Long Covid? New York Times** **📄 Download the preprint PDF from VitaminDWiki**

Those who get COVID-19 after being vaccinated (breakthru) are 1/2 as likely to get long-haul - Sept 2021

**[New York Times](https://www.nytimes.com/2021/09/01/health/breakthrough-infections-long-covid.html?_se=aGxhaG9yZUBnbWFpbC5jb20%3D) reporting on Lancet**

1/3 of UK Long Haul has lasted more than 1 year - July 2021

image **[Bloomberg](https://www.msn.com/en-us/money/other/long-covid-fears-grow-in-u-k-as-curbs-end-and-delta-surges/ar-AAMgSjQ?ocid=winp1taskbar)**

  • The U.K. strategy has been sharply criticized. More than 120 scientists co-signed a letter in the Lancet medical journal on July 7, warning that rising infections could leave hundreds of thousands of people with illness and disability “for decades to come.” International experts joined their British counterparts online to sound a further warning on July 16.

  • An estimated 962,000 people, or 1.5% of the population, have experienced self-reported long Covid symptoms in the U.K., according to data from the Office for National Statistics published earlier this month. More than a third of those said they’ve suffered for more than a year.

Long-Haul does not persist in children - Jan 9, 2022

**Long COVID symptoms and duration in SARS-CoV-2 positive children — a nationwide cohort study**

Long-Haul support groups

**[Body Politic - COVID-19 SUPPORT GROUP](https://www.wearebodypolitic.com/support-group)** 11,000 members July 2021 There are lots of ways you support our group if you have not been infected with COVID-19, or have completely recovered.

  • Request to join our Ally Support Network. We are especially interested in hearing from healthcare providers, wellness practitioners, lawyers, activists, and others with relevant experience in healthcare, chronic illness and disabilities, health justice, and emerging infectious diseases.

  • Make a monetary contribution. Our support group is run by a dedicated team of volunteer admins, most of whom are also Covid-19 patients or survivors, or people with other chronic illnesses and disabilities. Your contribution will help us cover operating costs and compensate members of our team for their hard work.

  • If you are a researcher interested in studying or collecting data on COVID-19 recoveries, please reach out to patient.research.covid19@gmail.com. We will review survey submissions and research opportunities to share with the support group as appropriate

  • Are you affiliated with a company or non-profit that can support this work in some way? For more information on partnerships, email info@wearebodypolitic.com with a short description of your organization or brand and how you would like to collaborate.

    https://www.survivorcorps.com/

Long haul on the web

See also VitaminDWiki: COVID-19 treated by Vitamin D - studies, reports, videos

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Reduce your risk of getting Long-Haul - Take lots of Vitamin D at first signs of COVID

Take lots of Vitamin D at first signs of COVID

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Tags: Virus