A feasibility study of educational tools for osteomalacia.
Clin Rheumatol. 2016 Oct 26.
Waxman R1, Adebajo A2, Robinson S3, Walker D3, Johnson M4, Rahman A5, Samanta A6, Kumar K7, Raza K8,9, Helliwell P10.
Urdu is spoken in Pakistan and India
Ostoemalacia results from softening of the bones
Ostoemalacia bone pain preceeds Osteoartiritis
Ostoemalacia in children is often called Rickets
The two groups were very mismatched in intial understanding of the importance of Vitamin D, so not much was learned in this feasibility study
See also VitaminDWiki
- Search VitaminDWiki for OSTEOMALACIA 836 hits as of Oct 2016
- Adult osteomalacia (rickets) pain in an individual relieved by vitamin D, etc. – May 2013
- Quick, free, self test of vitamin D deficiency simple test of bone pain
- Overview of Rickets and Vitamin D
- Solar and nutritional Osteomalacia (soft bones at all stages of life) – Jan 2019
- Rare Nutritional Rickets increased 10X in 20 years – Feb 2013
- Rickets prevented by single injection of vitamin D or weekly supplementation – RCT Jan 2014
- Child abuse, vitamin D deficiency, or what - for parents and defense attorneys - Cannell June 2015
- Rickets needs Vitamin D and Calcium - Global Consensus Jan 2016
Download the PDF from VitaminDWiki
Many people in the UK, particularly people of South Asian origin, are advised to supplement their vitamin D intake, yet most do not. This suggests an unmet educational need. The osteomalacia mind map was developed to meet this need. The mind map contains culturally sensitive images, translated into Urdu and made interactive on a DVD. This study explores the feasibility of a randomised controlled study to measure the effect of education on improving vitamin D knowledge and adherence. This was a pilot and feasibility study. Cluster randomisation was used to avoid inter person contamination. Two South Asian women's groups were recruited to receive information about osteomalacia either by interactive DVD or an Arthritis Research UK leaflet. Knowledge and compliance were tested before and after the educational interventions via a knowledge questionnaire and the measurement of vitamin D and parathormone levels.
The groups were found to be mismatched for knowledge, educational attainment and language at baseline. There were also organisational difficulties and possible confounding due to different tutors and translators. The DVD group had high knowledge at baseline which did not improve. The leaflet group had low knowledge at baseline that did improve. The DVD group had lower parathormone which did not change. The leaflet group had an increase in vitamin D but parathormone remained high. Performing a randomised study with this population utilising an educational intervention was difficult to execute. If cluster randomisation is used, extreme care must be taken to match the groups at baseline.
PMID: 27785646 DOI: 10.1007/s10067-016-3451-2